Wednesday, October 28, 2009

Get It Down, 31 for 21 (Day 28)

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Aiden had another visit with audiology yesterday. According to the results of the bone conduction test, a few tympanograms, some test with little foam tubes stuck in his ears, and another test with ear phones on Aiden's head (Sounds like a lot huh? Try sitting through it with the child sitting on your lap!), Aiden has moderate to severe hearing loss. If you're not sure what that exactly means.... on the IQ charts that all parents of a child with Down syndrome loves.... most children with Down syndrome falls into the mild to moderate (50 - 77) category of mental retardation. There are a few who fall into the moderate to severe (under 50) category.

Apparently, Aiden can't hear much of anything. According to the audiologists. 

However, the child will ask to be sung to. And he'll sign along. And I don't have to yell at him. I'm pretty sure he doesn't read lips.

And that doesn't explain why I can run the Kirby vacuum and not the shop vac without Aiden having a major melt down. 

The child will also sign "eat" or "drink" or "thirsty" when I verbally ask him what he wants. I'm not signing those questions to him.

In other news, I have delivered all the invitations to Aiden's Make-A-Wish celebration. In less than a week, Aiden will be the proud owner of his new playground. On November 7th, we are having a party to celebrate Aiden's "Happy Heart" and we invited 30 of his friends and doctors. We even invited his warden, Dr. Pediatric Cardiologist. Yes, we call her his warden; she pretty much owns his tiny little butt until he turns 18.

Oh, and I discovered an issue with having a child who is hyper-flexible. Aiden kicked himself in the eye today. Seriously. When I picked him up from school today, he had the beginnings of a black eye.





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