My Back Hurts

Since Aiden has discovered this walking thing, that is ALL the little boy wants to do. Walk to the bathroom, walk to his bedroom, walk to the dining room, walk to the living room, walk to the kitchen, walk outside, walk down the driveway. Walk, Walk, Walk, Walk. He even tried to run yesterday. I'm not ready for running.

Aiden is also sick. So is Chris. Aiden's is sinus drainage causing him to gag on the mucus setting off the gag reflex. I don't know what Chris's issue is, but his stomach has been upset. Yay me! NOT!!!

We went to meet with Dr. Genes yesterday. He wanted to know why we made it to his office now, when Aiden is nearly 3. I had to tell him about the last cath lab and about cardiologists not being convinced Aiden's lack of weight gain is due to the heart only his mother could love.

He then asked what kind of Down syndrome Aiden has. I told him that we really didn't know. Down syndrome is Down syndrome, either you have it or you don't. Aiden has it, good enough for me. When I was given the diagnosis, I said "Okay" not "What specific type?" According to Dr. Genes, that was the question he would have asked. Well, at the time, I wasn't thinking that far ahead about future weight gain issues.

I'm pretty sure Aiden does not have translocation as no one else in the family has it. Only a few of Aiden's medical team has questioned mosaic. Since Aiden wasn't pre-diagnosed or born in the St. Francis health system, the amniocentesis results aren't in the records. Can I get those for him? Um, sure. Maybe.

Diagnosis: Failure to Thrive.

I hate seeing that on a piece of paper. I do. Seriously, you might as well kick me in face. That medical term needs to be changed to something else. So, more blood tests were ordered; 7 more.

1. Complete CBC
2. Complete Chem 14 panel
3. Pre-albumum screening
4. Insulin like growth factor
5. Complete thyroid panel
6. Complete celiac panel
7. Zinc level

Aiden wasn't too happy with the phlebotomist, even though she stuck him on the first try. Dr. Genes also suggested vitamin supplements, so I have to call Dr. Pediatrician to find out what she wants him on. (Side note, just called and left message for Dr. Pediatrician to call back with vitamin information - I'll forget otherwise.)

Due to Dr. Genes wanting the amnio results, I had to call Dr. Ob/Gyn at home, because she moved offices and I don't have the new number. I was hoping that she retained all the records from the old group, but nope. However, she is going to call that group and have them send the amnio results to Dr. Genes. Dr. Ob/Gyn said that she didn't remember seeing anything unusal regarding the results, so she was thinking Aiden has "garden variety" Down syndrome, or non-disjunction.

Calling Dr. Ob/Gyn prompted the memory that I am due for that exam. While I love my ob/gyn, I hate that exam. I really do. I don't know one woman who particularly likes that exam. My ex husband once said that I must really enjoy going, since I went so often (I had to go every 6 months, due to cancerous cells). I informed him of what exactly happened in that exam. I even offered to make him an appointment with the proctologist as the exam was the same. He apologized and never brought it up again. And now that I am over the age of 35, more things need to be examined. More things need pushed, poked, proded and squeezed. YAY!!! NOT! Why do I feel the need to take a sedative before I go to the ob/gyn office?