Thursday, August 30, 2007

Happy Birthday to My Baby



August 30, 2006

My appointment at the perinatologist's office was at 1:30pm that day. I had breakfast, showered and dressed to leave the house by 11:30. I remember waking up for the day. Thinking that it would be just like any other day. The only difference was that I had to make the routine drive to Oklahoma City to see the perinatalogist. I went every other week for an ultrasound, so I didn't think anything special. But I should have thought about the jinx Teressa placed on me just two days earlier. "When you go for your next visit, make sure to have your bags packed. He'll probably keep you. You're not putting on weight." My bags had already been packed I told her. I was paranoid, even at 28 weeks when I packed my bags.

The drive to the city was pretty uneventful. The weather was warm and sunny. I rolled down the windows in the truck and had on the 80's music channel. Chris had called on my way there. I stopped at the McDonald's just outside of the city to use the bathroom. Hey, I was 34 weeks pregnant, I had to go A LOT!!

I made my way to Mercy hospital where Dr. Mirabile's office was. I took the elevator to the 3rd floor and walked through those doors. After about 15 minutes, the nurse called and I was taken back to the ultrasound room. This room is awesome!! There is a huge flat screen plasma tv to watch the ultrasound on. The tech is doing the u/s for a few minutes. Then she says the doctor will come in just a few minutes. When Dr. Mirabile gets in the room, he does another u/s. The first thing he said was, "Have you had anything to eat or drink today?" I said that I had breakfast at 8:30 and water on the drive to the city. He said, "Well, no more for today. You're having the baby."

I think my heart stopped. I thought I was dreaming. Why am I not waking up? All of a sudden, reality hit. I was awake!! The next thought that ran through my head, was "the baby isn't ready! I'm only 34 weeks! He's lying." And I looked at him like he had three heads. "Are you sure? He's not ready! Can he survive?!" I'm in tears and all I heard was "Yes, he can survive". I called in to work and told them that I was going to begin my vacation. Ed must have thought I was nuts as I hadn't asked in advance. I told him that I was having the baby today. I could hear the shock in his voice as he said, "Oh, I didn't know." I told him that I didn't either.

Dr. Mirabile asked if I knew how to get to the OU Children's Hospital. I told him I barely knew how to get to Mercy. He smiled and said, "It's ok. We have a map for you and they are expecting you. When you get there, go to the fifth floor. I'll see you shortly." I left the office with two pieces of paper. One, a map of the OU campus and the second one, a hand written directions to the hospital.

I made a few phone calls. One to my mom, two to friends, and one to Teressa. I remember asking the woman at the turnpike gate if I was on the right road. She told me the shortest way to the hospital I was going to. Chris called again asking what time I would be home. I told him that I wouldn't be home that night.

I finally made it to the OU campus. This place is HUGE!!! I drove around it twice trying to find the right building and the parking area. I pulled into valet parking and asked where the patient parking was. The valet said I was in it. There are maybe 30 parking spots. He asked if I was a patient. I told him that I was going to be, I was going to have a baby. His eyes got huge and asked if I was in labour. I told him no, I was just going to have a baby. He was so kind and asked if he could help carry my bags into the hospital. He walked me all the way to the fifth floor and carried my things to the admitting office.

I checked into the hospital and was taken to a private delivery room. There, I waited about an hour before anyone came to check on me. Finally a nurse comes in and gives me a "peek-a-boo" gown and takes my blood pressure. She asked who my doctor was and I told her. She said that she really liked him.

My family shows up about two hours after I called the first time. My mom, my sister, and my niece were all there. Dr Mirabile comes about 15 minutes after them. We discuss what was going to happen. The anesthesiology team comes in and asked their zillion questions. A few minutes after 8pm, I am wheeled into an operating room. There are wall to wall doctors and nurses there. I scoot over to the other table and have to sit there while the anesthesiologist is putting a needle in my spine and injecting some unknown paralytic into me. I laid on this table in what I call the "Jesus" position. I felt like I was about to be crucified. My arms and my legs were strapped to the table and someone kept pinching my legs.

Finally, I was numb. Really numb. I couldn't even feel my tongue. Spinal blocks rock!! They should market it!! At 8:45pm, Dr. Mirabile starts to make the incision. He's telling me what is going on. Like, "Here are the legs" (Aiden is breech), and here is the butt." I remember looking at the anesthesiologist and telling him I needed to throw up. It's a weird feeling to know that you are being cut on and a baby being taken out of you and not feel it. Well you can feel the tugging and pulling, but you don't feel like another human is coming out of you. After what seemed like forever, but was only 6 minutes, Dr. Mirabile announces, "It's a boy. Born at 8:51pm."

I try looking around, but I couldn't see Aiden. I could hear him scream. When I heard that scream, I let out a breath. He had a healthy scream. Someone in the backgroud said that his Apgars were 8 and 9. My delivery nurse was taking pictures. Another doctor held Aiden up for me to see for a spilt second. Then he went away.

I knew where he was going. He was going into the delivery room next to the one I was in. In that room, there was another team of doctors waiting. A cardiac surgical team.

Back in my private delivery room, I was sitting back feeling cold. The nurse kept coming in telling me to move my foot. Somewhere between my brain and my foot, the message got lost. I couldn't move my foot. Spinal blocks don't rock so much now. I was talking to my mom, sister, and niece when some woman walks into the room. She introduces herself as the cardiologist. She said that Aiden's heart looked good, considering the two big holes in his heart, but he wouldn't be requiring life saving surgery that night. A few minutes later, a portable incubator is being slowly inched past the doorway. Inside this incubator is a tiny, 2lb 13oz, 15 inch little boy known to the world as Aiden Wyatt.

August 30, 2007

Why am I up at 5:00am? My alarm doesn't go off until 6. I listen to the monitor that is just three feet away. All is quiet. I thank God for the miracle given to me a year ago. In the next room over, Aiden is quietly sleeping still. I get up and take a shower. Today is going to be just like every other day.

When I get out of the shower, I hear him moving. He is so cute waking up. He scrunches his little body and stretches out. He rubs his eyes and starts talking. I got dressed and went in to pick him up. I changed his diaper and went to make a bottle. We got his medicine ready and played our morning routine. After breakfast, I got him dressed and ready for school.

Thursday, August 23, 2007

From Aiden

Hello Everybody!

I go to school at the Little Light House...did you know that? I bet you did. My mom likes to tell everyone about my school, but now it's my turn to tell you all the great things about the Little Light House. Did you know that it is a school for kids with special needs, just like me? The grown-ups say it's real important for us to start learning early. There is even a list of kids waiting to come to my school... that's how great it is. We have special teachers that help us learn and we all love the toys made especially kids like us. Everyone is so nice and we have lots of fun together. I wish everyone could go to a school like mine.
It costs a lot of money to get all the things we need at our school. Some schools make the moms and dads for school..but not mine! I get to go there for free! My school doesn't get money from the government or United Way. All of the money we get comes from individual and corporate donors. Some grown-ups thind it's so amazing that all of the money comes from private donations. I think they are right.
I'm too little to have a job to give money, but fI can still help my school! The big people get to run in "Laps for Little Ones", but since I am still small, my school has a "Mini-Laps" race that I can do. I get to go around the track at my school one time. My friends will be there, too. Some of us will run or walk, some will ride bikes or scooters. Some of my friends get to ride in their wheelchairs or in a wagon, like I do. It is so much fun, I hope you can come and watch me on September 22!
I need people to sponsor me when I make my lap, so I can help my school. If you would like to make a donation, you can give a check to my mom (made out to TLLH) before Wednesday, September 19th. You can also send it in the mail or go to the website http://littlelighthouse.org . Make sure you tell them my name so they will know that you are sponsoring me. Because my school is a 501(c)(3) organization, you contribution is tax deductible...whatever that means.

Saturday, September 22, 2007 at 10:00 AM at The Little Light House

In case of Rain the event will be held on Saturday, September 29, 2007


The Little Light House
5120 E. 36th Street
Tulsa, OK 74135

Come cheer on the kids of The Little Light House in their own version of Laps for Little Ones. This premier event allows each of our students to glory in the strengths that the Lord has provided. Each student participates by making one lap around the specially designed Little Light House track. They do this with the help of bikes, floats, wheelchairs, skates, canes, their own two legs or the legs of others! At the finish linethere is a special award waiting just for them!

Afterwards enjoy a carnival with food, fun and games sponsored by our friends at Cendant Car Rental Group Avis Budget.

You can participate too by sponsoring LLH Kidz contact Marilyn Kelley at mkelley@littlelighthouse.org for more information.

Wednesday, August 22, 2007

School Bells Ring

Today was Aiden's official first day of school. Aiden took it better than I did, but he's so laid back and I'm not. When we got there, I found a place to park and when I took Aiden out of his car seat, I was trembling. My hands and my legs were shaking so hard. I carried him into the school, where we were greeted by Marsha Mitchell, the founder of the school. She said that when she met Aiden the other night at "New Parents Night" she went home and told her husband that he better watch out, she has a new boyfriend, Aiden.

We get to Aiden's classroom, which is full of parents and kids. Really, there are only 8 kids in the class, but brothers and sisters were there also. It was good to see a few familiar faces. There was Owen (also with T21) and his parents, Marcy and Tracy. Audrey (T18) and her mom. We also got to meet Caleb and Morgan (T21), Andrew (T17), Bethany (she is undiagnosed as of current), and little Brooklyn. Brooklyn has a rare genetic disorder of albinism.

When the school bell rang, the parents were shooed out of the classroom. We all gathered around the "looking glass" to watch the kids in Circle Time. That is where the teacher and aides sing songs to the kids and sign the words to the song. They did probably 6 songs. After circle time, it's snack time. Aiden got his midmorning bottle. Oh, I forgot to mention that Aiden gets his own aide. I could see that Aiden was loving being rocked and was about to fall asleep. So, he ended up napping during most of the next activity, which is gym time.

Throughout the day, they do various therapies. Both group and individual for gross and fine motor skills. Most of the mom's left for the day, some of us stayed behind and watched the kids. Aiden had an "accident" while at school. He was due for a diaper change, and the aide wasn't fast enough. He ended up peeing on his clothes and had to be changed into his other outfit I had brought for the day.

All in all, it was a good experience. I hope I am doing the right thing, so I think we'll go back tomorrow.


And God gave Gabi a Lily

It's hard to imagine why God sends us angels. Is it because he wants to teach us something? Some families get an angel with a heart defect. Most times, those defects are repaired and the angel gets to stay on Earth for years to come. Other times, those defects are repaired, but the stress on the angels earthly bodies takes it toll and the angels are called back to God. I think that maybe those are the angels that we weren't supposed to meet yet.

A little girl in Utah, who went through sooo much following three open heart surgeries, was called back to Heaven today. Lillian spent most of her life in the PICU because of complications from her heart surgery.

I'm going to choose to believe that little Gabi was lonely and missed her Heavenly "sister" Lillian. And that she has been crying for the last few days. I'm going to choose to believe that God didn't want to see Gabi crying and gave her a Lily to keep her company.



I don't take for granted one second that Aiden is here with me. I know that at anytime, his heart could fail and I would be left without my angel. Why is it that God takes some Home and leaves others here? I wish I knew that answer....

Tuesday, August 21, 2007

Anxious

Tomorrow is Aiden's first day of school and I can hardly stand it. He is still so small and is just a baby. I hope I have made the right decision to enroll him this early.

Monday, August 20, 2007

A Candle for Gabi

Today a very special little girl, Gabi, got her wings today. I would like to take time to light a candle for her family - Micah, Jason, and Gracie. Please visit their site to learn more about this precious little girl and her long fight.
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Friday, August 17, 2007

How It Is

I just cut and pasted this article. I think this sums up how I feel and what I think most of us feel. For those of you pregnant with a DS child or a family member that is concerned I hope you find some comfort in this because it so true.

"If these adorable creatures have Down syndrome they are at risk for certain physical and cognitive delays. It behooves parents to keep an eye open for problems that could arise. It's important that they know something about their child's diagnosis so that they can be alert and helpful. But my belief is that the most important things that parents of babies with Down syndrome can do are exactly those things that all parents do. You know: they cuddle, feed, sing and love. Not the kind of things you need a Developmental Therapist for… or any other therapist, for that matter."

"Very young babies with Down syndrome have specific concerns about early development. And doubtless, parents will find themselves driving this child about for ear infections, speech therapy, developmental evaluations, etc. But the main advice I have for parents of new babies with Down syndrome boils down to this:

You have a beautiful new baby.

There will be some areas that need work, but what you have right now
IS PRECIOUS AND PERFECTLY RIGHT. "


By Kate Sefton, Master Developmental Therapist

Wednesday, August 8, 2007

Holland and Miracles



This video was created for Down Syndrome Awareness Month and was played as part of the morning service at The First Baptist Church of Haverhill, MA.

"Welcome to Holland" is a short story by Emily Perl Kingsley and descibes what it is like to raise a child with a disability.

"Sometimes Miracles Hide" is a song written by Bruce Carroll describing the experiences he and his wife faced when learning the news that their daughter would be born with a disability. As with many parents who have faced this challenge, this song expresses our own experiences and feelings. I hope you find joy and inspiration from it as well!

Thanks to Dave, Cher, Pastor Howard and the members of FBC; family and friends; and many blessings to the families of Morning Travelers. Please visit MorningTravelers.org for more information